NetSarc-ResOs

Réseaux de référence Cliniques

Sarcomes - GIST - Desmoïdes - Tumeurs osseuses rares

L’ANSM suspend les essais masitinib promus par AB Science. Le GSF-GETO recommande imatinib ou sunitinib en remplacement.

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Data dictionary


Birth date
ID : 140
Type : Free value
Content : DATE
Mandatory : Yes
Multiple values : No
Unique : No
Description : The patient's birth date

Sex
ID : 141
Type : Constrained
Content : TEXT
Mandatory : Yes
Multiple values : No
Unique : No
Description : The patient's gender
Possible values :
Female, Male

Patient information
ID : 1032
Type : Constrained
Content : TEXT
Mandatory : No
Multiple values : No
Unique : No
Description : Consent information
Possible values :
Uninformed, Addressed mail, No opposition, Opposition, Consent

Initials
ID : 1031
Type : Free value
Content : TEXT
Mandatory : Yes
Multiple values : No
Unique : No
Description : Patient initials : 4 characters (2 of Lastname, 2 of Firstname)Attention to compound names

Significant previous history
ID : 1
Type : Constrained
Content : TEXT
Mandatory : No
Multiple values : Yes
Unique : No
Description : No: no significant previous historyNF1: presence of neurofibromatosis type 1 or Recklinghausen diseaseNF2: presence of neurofibromatosis type 2Radiation therapy: tumour developed in a previously radiated areaLymphoedema: tumour developed on a preexisting lymphoedemaGardner: presence of a Gardner syndromLi Fraumeni: presence of a Li Fraumeni diseasePrevious cancer: the patient has previously developed another cancer different from the current tumourOther: other significant previous history with a possible link with the current tumour
Possible values :
No, Previous cancer, NF1, NF2, Gardner syndrome, Li Fraumeni syndrome, Retinoblastoma syndrome, Immunodepressed - HIV, Immunodepressed - other, Ollier disease, Maffucci syndrome, Paget disease, Multiple osteochondromas, McCune-Albright syndrome, Rothmund-Thomson syndrome, Werner syndrome, Cherubism, Other genetic disease, Other, Unknown, Familial GISTs, Stratiakis-Carney dyad, Carney Triad, Other malignancy in family

Date of last contact
ID : 76
Type : Free value
Content : DATE
Mandatory : No
Multiple values : No
Unique : No
Description : Date of the last follow up evaluation or date of death

Vital status
ID : 1075
Type : Constrained
Content : TEXT
Mandatory : No
Multiple values : No
Unique : No
Description : Vital status at last contact
Possible values :
Alive, Dead

Significant previous history detail
ID : 1018
Type : Free value
Content : TEXT
Mandatory : No
Multiple values : No
Unique : No
Description :

Diagnosis during pregnancy
ID : 1087
Type : Constrained
Content : TEXT
Mandatory : No
Multiple values : No
Unique : No
Description : Diagnosis during pregnancy (CALG network enrollment)
Possible values :
Yes, No

Quality control NetSarc
ID : 1089
Type : Constrained
Content : TEXT
Mandatory : No
Multiple values : No
Unique : No
Description : Quality control NetSarc performed
Possible values :
Yes, No

Date of control
ID : 1090
Type : Free value
Content : DATE
Mandatory : No
Multiple values : No
Unique : No
Description : Date of quality control

Centre (NetSarc)
ID : 1071
Type : Constrained
Content : TEXT
Mandatory : Yes
Multiple values : No
Unique : No
Description : Centre NetSarc
Possible values :
Lyon CLB, Hôp. Civil Strasbourg, Hôp. Pontchaillou, CPS Strasbourg, Saint-Louis, Villejuif IGR, Bordeaux Pellegrin, CHRU De Dijon, CHU Nancy, Bergonié, Curie, Nice CAL, Dijon CGFL, Caen CFB, Marseille IPC, Nancy ICL, Lille COL, Montpellier ICM, Nantes ICO , IUCT Toulouse, Strasbourg CHU, CJP, Timone, Cochin, Rennes CEM, Limoges Dupuytren , Tours Trousseau, Rouen CHB, Nantes CHU, Reims IJG, Reims CHU, Besançon CHU, La Réunion CHU, Tenon, Pitié Salpétrière, Bicêtre

Creation date patient
ID : 181
Type : Free value
Content : DATE
Mandatory : No
Multiple values : No
Unique : No
Description : The date when the patient has been created in the database